43 Days

43Kevin Tamosaitis tells us on Nathan’s Playroom, that when “his wife gave birth to our second child, Nathaniel,” our first child, Sierra, was 4. Nathan was born with a condition called Spina Bifida. “We knew of his condition before his birth, and [we knew, due to the severity of his condition] he was not expected to survive” after birth. He had three surgeries within seven days of his birth.

The story continues . . . . “Three years later, we were blessed with our third child, Braden. When we first found out my wife was pregnant, we went through a multitude of tests due to our history. We were given the crushing news at that time that this child would [also] be born with Spina Bifida, and most likely have the same outcome as our first son.” Braden would also be born with Hydrocephalus and an Arnold Chiari II Malformation. “We were told that [Braden] would have little or no cognitive ability.”

Even though he had two surgeries shortly after he was born, Braden was sent home only 11 days after he was born. Five year later, Braden was doing very well. “Braden is a “bright, energetic, humorous, good natured kid, and a very typical little boy. As for his physical abilities, well, doctors don’t always get it right.”


How can you remain optimistic when dealing with the death of a loved one? If you were the one dying, how would you communicate to your loved ones that everything will be alright? If you have a choice, how would you spend the last 43 days of your life?

Thanks to the entire family whose story is shared in this post. Thanks to Nathan’s Playroom, YouTube, Wikipedia, and all the other people who made it possible to include the text and video in this post.


  1. I honestly can imagine the pain of knowing something like this. I know that in times like this one yells out to god and asks WHY !!!!!!!!!!!!!!!!!!
    But I guess the silver lining to this sadness is that it really makes you take a look back and really appreciate that little bundle of joy gave to the parents, I think it taught and revealed patience and true love AND THE VALUE OF LIFE.

    1. Nicole, I definitely agree that there are benefits even though the situation is very sad. The next post, which will be published tonight, describes the events that came after the 43 days. I highly recommend reading the next post too. The next post is titled “Nathan’s Playroom.”

  2. How can you remain optimistic when dealing with the death of a loved one? I find it difficult to answer the question without knowing who. Each person and relationship is unique. I have been told pain is the price we pay for loving. It was crushing to watch Nathan and his family. I can’t imagine the sorrow they experienced. I understand the loving decision to end suffering.

    1. Esther, like you, I cannot imagine the unbearable pain from the time of knowing to well beyond day 43. As you will see in the next post, the family that lost so much found a way to help others overcome their difficult times.

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