Epilepsy Awareness at Disneyland Resort

2015-0703 Epilepsy Awareness at Disneyland

When I hear about events I believe will interest only a few readers of the Beyond Adversity blog, I email the information to the readers rather than distribute a post to all readers that might not interest the majority of readers.  I chose to post the following information because several hundred Beyond Adversity readers live in Southern California where the event will take place and many of those people either have a condition, or know somebody with a condition, who could benefit by attending the event.

Excerpt from Business Wire News Release

While epilepsy affects approximately three million Americans, primarily children, the elderly and those suffering traumatic head injuries like athletes and military veterans, the general public is largely unaware of the real facts about the condition.

Epilepsy is the fourth most common neurological disorder in the U.S. after migraine, stroke and Alzheimer’s disease, yet it receives less than a tenth of the research funding of any one of them. That’s something the founders of the third annual Epilepsy Awareness and Education Expo, and Epilepsy Awareness Day at Disneyland are out to change.

“Epilepsy is the fourth most common neurological disorder in the U.S. after migraine, stroke and Alzheimer’s disease, yet it receives less than a tenth of the research funding of any one of them,” said Raman Sankar, M.D., PhD, who is the Chief of the pediatric neurology and epilepsy programs at Mattel Children’s Hospital UCLA.

The Epilepsy Awareness and Education Expo takes place in Anaheim at Disney’s Paradise Pier Hotel on Wednesday, November 4, from 10 a.m. to 5:00 p.m. Featured will be more than 80 nonprofit support groups, several epilepsy treatment centers, drug and related product manufacturers, seizure dogs and their trainers, physicians and other epilepsy professionals from around the world. It is anticipated that several significant announcements regarding the treatment of epilepsy will made at the event.

Epilepsy Awareness Day at Disneyland, set for Thursday, November 5, from 9 a.m. until the park closes, will send thousands of joyous children and adults touched by epilepsy in one way or another into the park adorned in colorful purple t-shirts sporting the image of Mickey Mouse.

The events are expected to draw more than 3,000 people from six continents, and nearby cities of Los Angeles and Anaheim.

For more information, visit www.epilepsyawarenessday.org. Sponsorships are available. Contact Brad at 949-333-1682 or Brad@epilepsyawarenessday.org

Contacts

For Epilepsy Awareness Day
Dan Pittman, 714-282-9994
dan@pittmanpr.com

To read the complete Business Wire release, click here.

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4 Comments

  1. Great U guys are going to Disney land.I can’t afford to go a two star restaurant for a change.They should have selected a nature spot instead of disney land.Entire place that they live are more or less like a Disney land.

    1. Ramesh, I agree that a nature spot could be better, but I don’t know of any nature spot that could host that many people — at least not without destroying the natural beauty. While you are right that some things in Southern California are a little goofy, not everything here is like Disneyland. There are several people here who are aghast at the admission fee Disneyland charges. There are several people here who oppose the noise and danger of the Disneyland fireworks. ~ Scott

      1. yes,the noise and crowd can be stressful and lower the threshold for seizure.But sounds in nature are calm and have a soothening effect in contrast to the sounds made by man made machines and gadgets.Too much of sensory stimulation should be avoided in such children.But this spot looks okay.I thought california is a less densely populated state.I have a textbook from a UCLA author on psychopharmacology.Many years back at the age of six I had two episodes of focal seizures of one lower limb and I fell down.I was having my bath then.it never occured again.No drugs were found necessary.Later I took part in high impact sports ;with injuries but unrelated to the original seizure that I had when I was six.

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